The National Institutes of Health (NIH) posted the final version of its Genomic Data Sharing (GDS) Policy in the United States Federal Register on 26 August 2014. Promoting data sharing to accelerate translation of data into knowledge, products, and procedures to improve health whilst protecting research participant privacy, the policy will apply to all NIH-funded, large-scale human and non-human projects that generate genomic data, starting with funding applications submitted for a 25 January 2015 receipt date.
A key tenet of the GDS policy is the expectation that researchers obtain the informed consent of study participants for the potential future use of their de-identified data for research and for broad sharing. Any institution submitting data must certify that they were collected in a legal and ethically appropriate manner and that personal identifiers have been removed. Moreover, investigators and their institutions must provide basic plans for following the policy as part of funding proposals and applications.
To find out more about the GDS policy and its other aspects, please see the following NIH press release:
We hope that readers of the WDS Blog may be interested in the recent report 'Open for Business', which provides a business case for Open Data and was commissioned by the Omidyar Network for the G20. Martin Tisné, Omidyar Network’s director, policy (UK) makes the economic case for open data in the following article in Government Transparency (18 June 2014):
John Orcutt is a Professor of Geophysics at Scripps Institution of Oceanography, UC San Diego, and is very interested in the issue of data publishing, having written a number of articles about this subject.
The American Geophysical Union have announced that Prof Orcutt will be the inaugural editor of its newest open access, peer-reviewed journal, Earth and Space Science. The journal will begin accepting papers in late summer 2014, and the first articles will be available in the autumn.
For more information on this appointment, please see the following link:
The American Geophysical Union (AGU) and Wiley (WDS Associate Member) have announced that, starting on 01 May 2014, all AGU journal content published from 1997 to 24 months ago will be made freely available—including its weekly newspaper, Eos. Additional content will continue to become open every month, on a 24-month rolling cycle.
In addition to increasing free access to journals online, AGU has also joined the innovative Access to Research initiative through its publishing partner, Wiley. This programme provides patrons of U.K. public libraries instant online access to journal content from 1997 to the present.
To find out more on AGU improving access to its articles, please click here.